If you missed the live chat on Peyronie’s Disease (PD) on April 16, a transcript has been posted. This is an excellent example of when to use the live chat format. The topic is sensitive and embarrassing, which impairs the flow of high quality information through the usual channels. As a result, there is high interest in gaining anonymous access to information, which chat provides.
A few things I learned from reading the transcript:
- There is a lot of misinformation about PD; a number of ineffective or even harmful treatments are being used
- Some patients are being told by physicians that there’s nothing that can be done for the condition, which is untrue
- PD cases have been associated with various treatments for prostate cancer
- Auxilium Pharmaceuticals is conducting a clinical trial for a PD treatment