As reported here last year (Abusing the orphan drug law to rip off customers), Questcor Pharmaceuticals has jacked up the price of ACTH –a treatment for infantile spasms– by a factor of 20.
It’s a serious problem for parents and pediatric neurologists who are left to deal with the consequences. I’m told that the Child Neurology Listserv offers resources on the topic, but it’s not open to the public.
Luckily there is a wiki at Miami Children’s Brain Institute that provides tremendous information and is open to all. The wiki provides information about ACTH, how to obtain and use less costly alternatives, background on Questcor and suggestions for people who want to take action.
The wiki is sponsored by the Peacock Foundation.July 17, 2008